February 28, 2025 is Rare Disease Day
February 28, 2025 is Rare Disease Day
Grinding 4 Good is proud to support Cardio-Facio-Cutaneous (CFC) International 501(c)(3) in its mission to improve the quality of life for individuals with Cardiofaciocutaneous Syndrome and their families through support, research, awareness and education.
CFC syndrome is a rare genetic condition that typically affects the heart (cardio), facial features (facio) and skin (cutaneous). It is seen with equal frequency in males and females and across all ethnic groups. Children with CFC syndrome may have certain features that suggest the diagnosis, such as relatively large head size, down-slanting eyes, sparse eyebrows, curly hair, areas of thickened or scaly skin, and short stature. Most will also have a heart defect. While there is a wide spectrum of severity in CFC syndrome, most individuals will have some degree of learning difficulty and developmental delay.
To learn more about CFC Syndrome visit their website at: https://www.cfcsyndrome.org/
10% of the Sale Price on every item purchased from the Grinding4Good eBay store is donated to charity to help support research into the treatment and cure of rare genetic conditions.
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